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Noah`s response to the changed time between medication is far more better
than we could ever hope.
The seizures are getting less,in number and intensity.
He gets a nice colour onn his face and starts to keep himself warm.
Noah 6 weeks old.
Noah proves to be very strong ; his beathing is fine,a gains weight very well en
he seems relaxed and content.
He loves his bath,to be cuddled and music! (not just any music , he prefers music
like Andrea Bocelli.)
It feel so good to have him at home and to make him as happy as we can.
Noah about 7 weeks old.
Noah gets more seizures again and his breathing is a bit irregular sometimes.
It will get harder and harder to fight this , but we do whatever we can to make life
as comfortable as we can for Noah.
We want him to be happy , that`s all that matters.
He still gains weight very well,about 200 grammes every week.
8 weeks.
We change he dose & the times between medication again,hoping things will calm
down a little.
It`s not working this time.
Noah has series of seizures that can last for 2 hours.
Again we increase the dose , being aware that Noah is slipping trough our fingers.
That phonecall we hope and pray for , that will say the doctors were mistaking after
all,or that they found a cure , doesn`t come.
We`re running out of time......
With my oldest brother and his childeren.
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